What Do You Do When The Doctors Can’t Figure It Out?
What do you do when you’ve lost it? What do you do when you think you can’t take it anymore? What do you do when you feel trapped or that you want to crawl out of your skin and transport yourself somewhere else, like a beach in Mexico with a double salt Margarita. What do you do when you have lost all your reason and focus and you don’t know what the next step is. You just can’t seem to get a grip to see through the fog in front of you so you know where you are going and why. Why am I taking this step in this direction when maybe it should be that other step. Your head is spinning, spinning out of control. What do you do when you feel like screaming forever from the tip of your pedicure needy toenails, through your worn out body and out your mouth to the heavens above. How do you relieve the pain when you do not drink, smoke, do drugs or drink coffee and the one bad habit of eating chocolate isn’t enough?
YOU GO BUY A SOFA!
Sound crazy? I totally agree. I thought of my partner, Claire Callaway’s blog about THERAPY SHOPPING and it sounds all too familiar. Well I could certainly use a dose of therapy shopping today. I love running to a thrift shop or Target or TJ Max and finding a wonderful treasure for $5 or $10. It is mostly just putting my mind somewhere else that helps. But today is different. Today is off the charts stress. This is mother load stress and I want to buy a SOFA! Yes you heard me. I have the desperate unrelenting urge to buy a sofa. It just popped into my head. I just want to hop in the car and buy a SOFA. Irrational?! Insane? Yes! BUT the stress of today and the last year has been insane.
My son has been very sick for the last year and a half. I actually have a lot of days like this. But it is nothing compared to my son’s suffering. And I get mad at myself for wanting to escape and buy a stupid sofa when he can’t escape. I can escape my surroundings but he can’t escape the body that has turned on him and also won’t allow him to get up and out to enjoy life again. I won’t go into specific details but it has been a horribly long, complex and winding journey of this “YET TO BE DIAGNOSED ILLNESS” and how it is has continued to spiral out of control and affect other parts of his body while they do the myriad of tests without finding definitive specific reason for the progression and evolution of this illness. Watching my son suffer the way he has and knowing all that he has lost (missing his senior year, missing prom, loosing friends) and feeling so helpless is enough to drive any mom around the bend. You never think your child will have a serious illness. You hope and pray everyday that will never happen. But if it happens and the doctors can’t figure it out and cannot diagnose the problem for almost year and a half of trying- what do you do? Well…you buy a sofa! And I’ll say the doctors made me do it.
There are 3 doctors’ faces that my son and I have come to dread. You too may have seen these faces. But if you haven’t, trust me these faces are bad enough to make you want to buy a sofa.
- Number 1: the look on their face when they don’t have a clue what the hell is going on and are lost as to how to move forward.
- Number 2: The look on their face when they want you to disappear because you are just a reminder of their failure and their ego can’t deal with it.
- Number 3: The look that you are a bossy over reacting hysterical mom / woman. It is the look of mommyism and sexism.
The worst grievance of all and the most stress inducing is the lack of caring. The down right cavalier perhaps unintentional “your son’s suffering is not a priority” attitude that you deal with day in and day out especially when you can’t reach a doctor or a nurse. When they take their bloody time calling you back, despite how many desperate messages you’ve left, it doesn’t seem to matter that you are waiting by the phone and rescheduling things so you don’t miss that call and the stress that causes. They don’t seem to realize what the consequence is to their patient when it takes 5 to 10 days to return a call or give a test result. The consequence is that the doctor who is supposed to be helping relieve the patients suffering ends up causing more suffering to that patient and the mom (caregiver) ends up with all the nerve endings in her entire body fried like a MacDonald’s Filet of Fish. And then when they do call you back they of course are bothered by having to do so and have too little time to talk so you panic and lose your train of thought, forget the list of questions and points you wanted to make and you are left dangling with a horrible sense of incompetency for having blown this incredibly important opportunity that you could wait another 3 weeks for.
Of course there have been some good medical personnel along the way but today I am not thinking of them. I am thinking of my son and all he has been through and how brave he has been. I am thinking of yet another incident with a doctor that ruined the day. That made us all feel so unimportant. And all I can think of is that darn new sofa I want to run out and buy and have delivered this very day even if I have to strap it to the top of my little Honda Fit. There is no good reason I can think of to buy a sofa. I don’t even need a new sofa. I guess it is just the kind of stressful day where nothing but a big-ticket item will do.
However, since writing this blog the urge has gone. Let’s call it “therapy writing” instead of “therapy shopping”. I will call my mom or one of my dear friends instead and bend their ear a while. I will give my son another hug or maybe hundreds. I will kiss my precious doggies on the tops of their heads and give them a doggie cookie and I will feel clearer and more hopeful again. I will probably eat some chocolate and then I will fight to gain my focus and my strength back so I can forge ahead to MAKE the doctors care more deeply about solving the mystery of this illness so my son will be cured sooner rather than later. That is what moms do. And I will do it all without rushing out to buy a brand new sofa. Hopefully.
Debbie Zipp, blogger for IN THE TRENCHES PRODUCTIONS, The First Entertainment Website Celebrating the Power and Beauty of Women Over 40
You can leave a response, or trackback from your own site.
Debbie,
I have found writing to be very therapeutic. I even have some angry letters to God that I may publish someday. I am so sorry that you and Trevor are still having to go through this ordeal without some real concrete answers but I remain prayerful that all things are going to work together for good.
Debbie,
Just hearing all that you and Trevor have been through trying to get a diagnosis irates me. There just aren’t excuses for medical care, or lack of the same.
I know this is a very long shot, but have they tried to find out if he has some type of intestinal tape worm? Those are generally only found with diagnostic surgery. The symptoms sound wierdly like that or even chemical poisoning. After all the testing, he must surely have something very out of the ordinary, so unorthodox means of diagnosing might be necessary.
I’m praying that God will place in your path exactly who Trevor needs, and that it be expedient! Hang in there dear sister. God gives us grace for each day.
My thoughts and prayers are with you and your son. I will visualize him healthy, whole and dancing!
Warmly,
Donna
Dearest Debbie,
My heart is full with sympathy for you and your son. This 18 month ordeal has got to have been so overwhelmingly difficult and painful for you both.
I went through something similar with my mother. And the “factory” model of medicine boarders on the criminal. Some health care professionals are wonderful, but others are cold as ice. It’s as if the patient is a specimen for them to poke and prod–not a human with feelings, hopes, and fears. As a mom, this has to feel as if you’re being tortured in the cruelest of ways.
I do pray that some insightful physician comes up with just the right answers very soon and that you and Trevor are spared any additional frustration and pain. You both deserve the best in life. Hopefully, it’s right around the corner.
With my very best wishes,
Eileen
Debbie,
So glad that you wrote this post. You expressed yourself perfectly, and helps me to understand you even more.
I look forward to interviewing you today on blog talk radio. You are a treasure!
Hugs,
Sally
http://www.drsallywitt.com
My heart goes out to you and your son. I understand all too well the anguish you feel. I experienced it not once, but twice, with my daughter. I will spare you all of the details. Just to tell you that at 5 years old she weighed 27 pounds because she was unable to eat anything without vomiting. Doctors were completely stumped and then one day it stopped. She was fine for years until her senior year of high school when she again suffered an array of puzzling symptoms and again was diagnosed with everything from an ulcer to Lyme disease. This time, although she has improved, she still is not “well”. And we still don’t know what caused either set of symptoms. But you do what you have to for your child and know that we are all here to support you and Trevor. And yes, writing helps. I have a whole journal from my experience when she was 5. Sometimes it was the only thing that kept me sane.